Neither Executive adopts Arthritis Care goals

Northern Ireland Executive’s Draft Programme for Government was revealed on November 17, and it included two important commitments which will make a difference for people with arthritis and for which Arthritis Care has been campaigning hard.

The two commitments are to provide better access to anti-TNF (biologic) treatments for people with severe rheumatoid arthritis and to ensure that people with long term conditions have access to self management training and other education, information and support programmes to help them manage their conditions effectively.

Arthritis Care has campaigned long and hard, with the active participation of members and others with arthritis, for better access to anti-TNF’s, which can be life transforming for people with severe RA, and which are much more readily available in other parts of the UK than in NI. The Programme for Government now pledges to ‘enhance access to life-enhancing drugs for conditions such as rheumatoid arthritis, cancer, inflammatory bowel disease and psoriasis…’. Minister for Health Edwin Poots MLA has said that he hopes to reduce the waiting time for access to anti TNF’s from 9 months to 3 months.

Arthritis Care has also pressed hard, though the Long Term Conditions Alliance Northern Ireland, for recognition of the value of the self management training and information work which the organisation and other groups in the Alliance carry out. The programme for Government now makes the commitment to make such training and information available for those who want it, and to work with stakeholders to secure appropriate support programmes to help people manage their long term condition effectively.

Steve McBride, Arthritis Care’s Policy Adviser for Scotland and Northern Ireland, said ‘These proposals are a big step forward, and will have real benefits for many people with arthritis. There is still work to be done in ensuring the full and effective implementation of these policies, but the Programme for Government pledges are a real success and everyone who has taken part in helping to bring them about can take real satisfaction in this very positive outcome.'

The full Programme for Govenment document can be read at:
http://www.northernireland.gov.uk/draft-pfg-2011-2015.pdf
The draft document is now open for consultation until February 22, 2012.

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2011 quality of rheumatoid arthritis services in the NHS survey

The consultation, launched on World Arthritis Day is aimed at patients, clinicians and commissioners and seeks to assess the progress that has been made in improving services for patients with rheumatoid arthritis since the publication of the 2009 National Audit Office report Services for people with rheumatoid arthritis which outlined a number of concerns about the provision and quality of services for patients.

The consultation asks participants for feedback on the state of services in their area, the information and support available to patients and whether patients are getting access to the treatment and care they need to manage their condition.

Upon launching the consultation Federico Moscogiuri, Head of Policy and Public Affairs for Arthritis Care said: "Over two years since the National Audit Office published its findings into the state of services for people with rheumatoid arthritis, Arthritis Care remains concerned at the current quality of these services in England, particularly against the current backdrop of NHS 'efficiency savings'. That is why this World Arthritis Day we are launching this survey with clinicians, commissioners and people with rheumatoid arthritis across England, to determine how services have changed over the past two years and get an understanding of where further progress is needed to improve services for people with rheumatoid arthritis. This survey will feed into our newly-launched ArthritisWatch project, which will gather evidence of changes and cuts to services for all people with arthritis in England. For too long musculoskeletal conditions such as rheumatoid arthritis have not been a priority for the NHS: we hope this initiative can help to change that."

You are not obliged to answer any of the questions, but the more information you are able to provide, the stronger our evidence will be. We will not contact you and your answers will remain anonymous.

Survey for people with rheumatoid arthritis

Survey for doctors and comissioners

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Rheumatoid arthritis in Quality Outcome Framework consultation

Rheumatoid arthritis (RA) could be included in England’s Quality Outcome Framework (QOF). Arthritis Care has long campaigned for arthritis to be covered by the QOF to ensure the condition is prioritised and those living with it get the best outcomes from their healthcare service.

There are 20 potential new QOF indicators across nine areas currently being consulted on – RA is one of the areas being proposed. NICE is now consulting on whether to include RA and the five indicators they have chosen for the condition.

‘This is potentially great news for those living with RA in England,’ said Federico Moscogiuri, head of policy and campaigns at Arthritis Care. ‘Arthritis Care will be responding to the consultation to ensure we push for the most appropriate indicators to be included.’

Dr Fergus Macbeth, director of the Centre for Clinical Practice at NICE, said: ‘This consultation on potential new indicators is an integral part of NICE's process for QOF. The final menu of indicators, to be published on the NICE website in August, will support healthcare professionals to deliver good quality patient care, based on the best available evidence.’

Introduced in 2004, the QOF is a voluntary incentive scheme for GP practices in England, rewarding them for how well they care for patients. Arthritis Care continues to campaign for osteoarthritis to be included in the QOF.

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NSAIDs Plus PPIs May Cause Serious Problems for Arthritis Patients

It has long been known that nonsteroidal anti-inflammatory drugs (NSAIDs), like naproxen and ibuprofen, are associated with an increased risk of gastrointestinal complications (ulcers and bleeding). Some arthritis patients have been prescribed proton pump inhibitors (PPIs) with their NSAID to reduce stomach acid. PPIs include drugs like Nexium, Prevacid, and Prilosec. But this may be a problem, according to researchers from the Farncombe Family Digestive Health Research Institute.

Study results published online July 11, 2011 in the journal Gastroenterology suggest that, while PPIs do protect the stomach from damage caused by NSAIDs, the problem is shifted to the small intestine. The problem may even be greater in the small intestine because ulcers located in that area are more difficult to detect and more difficult to treat.

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